The excitement of anticipating our baby’s arrival was overwhelming. The pregnancy had been progressing well, with all tests yielding positive outcomes. We felt calm, joyful, and eager to meet our son. However, just as we began to envision our future as a family, everything changed in a heartbeat. At 26 weeks, our lives were turned upside down.
During a routine ultrasound, the doctor fell silent after examining the blood flow to Jaś’s brain. Moments later, he delivered the shocking news: Jaś’s ventricles were dilated. Our hearts dropped. What could this mean? The doctor recommended further testing, and fear began to creep in.
The results were heartbreaking. Jaś’s brain had sustained damage, and his ventricles were filled with cerebrospinal fluid. The doctors diagnosed him with advanced hydrocephalus, stating that Jaś had no chance of survival. The grief we experienced in that moment was unbearable. The thought of losing our son felt like an unimaginable injustice. Why was this happening to our beloved child?
For a week, we found ourselves in a state of uncertainty, waiting, hoping, and trying to muster the strength to comprehend what was unfolding. Our world had been turned upside down. We were sent home with no hope, instructed to prepare for Jaś’s passing. But we refused to accept this fate. Each day, we counted the movements Jaś made in my womb, each one a flicker of hope that we clung to. We had to keep fighting for him.
Then, a miracle occurred.
Against all odds, Jaś was born on December 14, 2015, via cesarean section. His first 24 hours were spent in an incubator as doctors closely monitored him and conducted numerous tests. When the results came back, we faced another devastating blow: Jaś had bilateral schizencephaly and massive hydrocephalus. Yet, despite everything, we were filled with joy that he was alive!
The challenges continued. Jaś’s birth defect brought numerous health issues. His muscle tone was abnormal, and further evaluations revealed additional problems, including voice disorders, speech disorders, hearing loss, epilepsy, and scoliosis. Our son’s journey was just beginning, and it was clear it would be far from easy.
Since he was three weeks old, Jaś has been undergoing intensive rehabilitation. The medical team had little hope for him, but Jaś consistently proved them wrong. He is a fighter. A cheerful, happy boy, and every smile he shares reminds us that there is always a reason to hope. His joy, despite his challenges, motivates us daily to keep pushing forward.
Jaś now receives ongoing care from various specialists. We strive to make his daily life as comfortable and functional as possible. However, the costs are staggering. The medical equipment, therapy sessions, and rehabilitation tools Jaś requires to continue progressing are beyond our financial capabilities. Each piece of equipment, every specialist’s consultation, and each therapy session is a lifeline for him—but they all come with a hefty price tag.
That is why we are reaching out to you for assistance. Jaś deserves a chance at independence, at a future where he can live free from the limitations imposed by his condition. With the right tools, care, and support, we believe Jaś can continue to fight and thrive. Every contribution matters, and no donation is too small to make a difference.
We have already witnessed Jaś’s strength, and we know he is capable of so much more. With your help, we can continue to provide him with the treatment and resources necessary for him to reach his fullest potential. Every contribution you make will help Jaś live as independently as possible and pave the way for a brighter future.
Thank you for your support, your kindness, and for helping us fight for our son. Jaś’s journey is far from over, but with your assistance, we can ensure that his story continues with hope, love, and the strength to overcome any obstacle.
