In the midst of a challenging journey, there are moments when even the smallest progress feels like a major victory. For Theo and his family, October 21st brought one of those moments. After a turbulent few days filled with uncertainty and worry, Theo experienced a much-needed stable night. Though there was one episode early this morning, the overall progress has been heartening.
Theo’s family, who has been by his side through every step of his battle, has been lifting him up with prayers, love, and unwavering support. And, as they reflect on the day’s small victories, they know that every prayer and every bit of positive energy sent Theo’s way has made all the difference.
“I want to thank everyone for their prayers,” Theo’s parent shared, with a sense of deep gratitude. The love and support from friends, family, and even strangers have been a constant source of strength during this difficult time. It’s been a rollercoaster of emotions, but the outpouring of love from the community has brought comfort to both Theo and his family.
After sending out the update yesterday, Theo’s parent took a brief moment for dinner before returning to his side to prepare him for bed. What happened next took them by surprise. Theo, who had been struggling, seemed like a completely different baby. Though they had given him a PRN (pro re nata) dose of Versed, a medication to help with his discomfort, there was something more at play. The calming effect of the medication was certainly helpful, but Theo’s family believes the real difference came from the overwhelming flow of love and prayers that had surrounded him.
In that moment, Theo’s family was able to do what they hadn’t been able to in quite some time. They were able to weigh him, change his linens, wipe him down, and even dress him without an episode. These tasks, which might seem mundane to many, were a monumental achievement in Theo’s journey. For his family, it was a sign that things were finally starting to shift in the right direction.
“The relief we felt in that moment is hard to put into words,” they shared. “It was like we had our Theo back — calm, comfortable, and at peace.” It was a moment of pure joy, one that reminded them of the power of community support, the importance of medical care, and the incredible resilience of Theo himself.
The progress didn’t stop there. Though the changes for the day were minimal, they marked an important shift in Theo’s care. His medical team decided to begin weaning him off the Versed, something they had been carefully monitoring. Theo’s family had been concerned about the potential side effects of medication withdrawal, but they were relieved to find that Theo was not as sensitive to the weaning process as initially feared. The team felt confident in taking this step, a small yet significant adjustment in his care plan.
Theo’s primary nurse, who has been a constant and caring presence in his life, was back with him today. This is a nurse who knows Theo’s needs inside and out, understanding how to intervene when he experiences discomfort or distress. Her familiarity with Theo’s condition has been invaluable, offering not just professional care, but the comforting consistency that Theo needs to feel secure. With her presence, Theo’s family felt a renewed sense of hope that they were in the best hands possible.
And as if the day wasn’t full enough already, Theo’s Lolli (his grandmother) is visiting him today, bringing even more love and support to Theo’s side. Family has been a cornerstone of Theo’s journey, and every visit, every call, and every gesture of kindness has been a reminder of the strength that comes from family bonds. The love of his grandparents, his parents, and all of his supporters continues to be an essential part of his healing process.
In the midst of all this, Theo’s family feels an overwhelming sense of gratitude. While the road ahead is still long and filled with uncertainty, today has been a reminder of how far they’ve come, how much progress Theo has made, and how deeply they are loved and supported by those around them. The comfort of knowing that Theo is getting stronger, both physically and emotionally, is a blessing they hold close to their hearts.
“Today has been a day of progress, and we’re holding on to that,” Theo’s parent said, their voice filled with emotion. “We’ll keep trusting, believing, and celebrating every small win along the way. We’re not out of the woods yet, but with each step forward, we’re closer to the healing we’ve been praying for.”
Theo’s journey is a testament to the power of love, community, and resilience. Every prayer, every message of support, and every act of kindness makes a difference in his life. His family continues to hold onto hope, knowing that each day brings them one step closer to the brighter days they are so desperately hoping for.
As they continue to share their updates, they know that Theo’s story is not just theirs — it belongs to everyone who has sent their prayers and love his way. And so, with full hearts, they look forward to the next step in this journey, filled with gratitude, hope, and the deep belief that Theo’s strength will carry him through.
Stay tuned for more updates, and thank you all for your continued support. 💖
